Good Thursday morning, my friends. I hope you all are doing well and that your week has been good to you, thus far. That said, I just wanted to share a bit of Morgan’s week with you, specifically yesterday’s appointment with her doctor.
After visiting with her oncologist we learned that Morgan’s bone marrow is currently operating at 30%, thanks to a cellular test that was performed on the bone marrow tissue. For those of you that may not be aware, your bone marrow’s job is to produce red blood cells that carry oxygen to the lungs, white blood cells that protect our bodies from infection and platelets that help our blood to clot. This is why Morgan has been needing so many blood/platelet transfusions and has had fevers often over the past month or so.
Given the fact that Morgan went through 3.5 years of harsh chemotherapy from 2009-2012, has been receiving chemotherapy over the past year, and underwent immunotherapy in the Fall, it has become a bit challenging for her body to recover . To put things into perspective, during her current course of treatment, Morgan was supposed to be on oral chemotherapy daily , receive IV chemotherapy once a week for 3 weeks and then have one week off before starting the cycle again. This was supposed to go on for 6 months with the plan of finishing this course of treatment in July. However, she finished her 2nd month in April and has not been able to resume IV chemotherapy due to her bone marrow not recovering.That said, we have learned that it is possible for your bone marrow to not recover resulting in a bone marrow transplant. However, her oncologist is hopeful that it will with time.
All that to say this, Morgan is in peace with all that is going on with her little body right now. In fact, while she sat wrapped up in her pretty pink blanket waiting on her oncologist to come in, I asked her what she was feeling in that moment and her response was “peaceful”. As a mother, that could not have brought me more joy as I sat beside her. My prayer, is that we can all learn from Morgan’s example and choose peace in the midst of the storms of life!
May you all know that you are loved and that the blessings of the Lord surround you! Take care!
Hi, guys! Good Wednesday evening. I just wanted to send out a quick message to let you all know that Morgan had a bone marrow biopsy and spinal tap done earlier today. Although she handled the procedures like a champ, she has been pretty tired and has experienced pain off/on at the biopsy site, which is to be expected. That said, we should be receiving the results from the procedures in about a week. Please join our family in praying for answers. For it is the uncertainty of what is going on in her bone marrow that has us unsure of how we are to move forward.
Well, good Wednesday evening, my friends! It sure has been quite some time since I last connected with you guys on Morgan’s behalf through this blog. I hope you all have been following our daily post on her Facebook in the interim.
If so, you likely know that it has been a busy couple of months for Morgan. She was admitted into the hospital for 10 days, seen in the ER and readmitted for a short time in May. She has also had 2 clinic visits weekly since that time where she has received blood &/or platelet transfusions, IV antibiotics due to fevers and most recently an inhalation treatment to prevent her from developing pneumonia due to her low immune system.
With that said, Morgan was seen in the clinic today. After receiving her inhalation treatment, platelets and blood, we had a discussion with her physician in regards to her blood counts not showing any signs of recovery since her last IV chemotherapy treatment in April. As you may recall, she has not been able to start her 3rd cycle of IV chemotherapy due to this. What we learned is that although her body could just be taking longer than normal to heal from the chemotherapy, there was a red flag in her blood work from yesterday that could indicate otherwise. Yes, all of this could be a result of the leukemia.
So what does this mean? Well, it means that Morgan has been scheduled for a bone marrow biopsy next week. Our hope is that it will give us a clear picture of what is going on inside of that little body of hers so that we can come up with a plan moving forward. For it is the unknown that makes things difficult.
On that note, please pray that whatever is taking place in Morgan’s body will be revealed to us and that the Lords will be done through it all. For we know and believe by faith that our purpose is greater than the human eye can see and that he has a plan in place for it all!
Good Thursday morning, everyone. I just wanted to take a few moments to send out an update on Morgan. As you may already know, she was admitted into the hospital on Tuesday afternoon following an appointment in the clinic. She went in that morning to have labs drawn with the plan to have a bone marrow biopsy and spinal tap the following day; however, her blood work revealed low counts. To be specific, her platelet count was 6 thousand ( normal 150,000- 350,000ish ), hemoglobin 7.8 (normal 12-16), and her immune system very low.
With that said, the plan was to transfuse her with platelets that day , cancel the procedures for the following day and have a blood transfusion, instead. In the middle of this she developed a fever. Obviously with her immune system being so low, a fever can complicate things very quickly, if you are not careful. After monitoring her for a bit, it was determined that she would need to be transferred to Dallas and admitted, as her temperature continued to creep up, despite the Tylenol she had taken to prepare for the platelet transfusion.
She is doing well, all things considered; although, she is pretty bruised all over her body from the low platelet count. Her time in the hospital has been pretty busy . Yesterday she received 2 units of blood, 2 units of platelets, IV antibiotics every 4 hours, IVIG and another IV medication to help her bone marrow recover from the last phase of IV chemo, which finished up 3 weeks ago. Our hope is that she can have the bone marrow biopsy/ spinal tap done today so that we can find out in the next week or so whether or not this current regimen is working. We did find out just a bit ago that she will be receiving another unit of blood this morning as her counts have not come up enough since she received the 2 units yesterday. I’m sure the hour long nose bleed was not helpful in the matter.
Let’s pray that we can proceed safely this morning as Morgan was scheduled to have these procedures last week. She is already about 2 months behind schedule on this 6 month treatment plan. To put things into perspective, she should be starting her 5th month of IV chemo next week; however, she will be starting her 3rd month once she is cleared to do so.
Well, I think that will do it for now. Once of us will update you guys via this blog &/or on Facebook as soon as we know more. I hope you guys have a great Thursday. Take care!
Hi, guys! Happy Thursday to you all. I just wanted to send out a quick message to update you on Morgan, being that I did not have an opportunity to do so last night. So, let’s get started.
For the past several days, Morgan has not been feeling well. She had been experiencing nausea, vomiting, fatigue, and sharp lower abdominal pain that radiated down her legs into her feet. The pain seemed to come in cycles every 2 hours and lasted about 15-20minutes at a time. It would then gradually dissipate. We initially thought that all of these symptoms were a result of the new medication that she started last Thursday: however, that was not the case.
While the nausea and vomiting is likely due to the new medication, the pain that she was experiencing is due to her being dehydrated , as is the fatigue. On top of that, she was in need of blood. That said, she received 2 units of blood and a bag of fluids in the clinic yesterday. Although she is not feeling 100%, she is definitely feeling better than she was, thankfully.
As far as IV chemotherapy, it was delayed for at least another week due to her platelets still being low. To be honest, this made us a little nervous being that she was supposed to start her 2nd month of weekly chemotherapy on 2/27/19. However, her oncologist assured us that being delayed is normal with this particular medication. Let’s pray that she is able to move forward with treatment next week.
Well, I think that will do it for today. I hope you guys have a awesome day. Make it a great one!
Hi, everyone! I just wanted to send out a real quick update to let you all know that Morgan was seen in the clinic yesterday, and that her IV chemo was postposed for another week. This makes her 4 weeks behind schedule on this 6 month phase due to her blood counts. That said, an adjustment was made to her daily oral chemotherapy with the hope that it will help in the recovery process. Let’s pray that it does. Besides that, she seems to be doing well. Although she had to start a new medication today due to a minor issue that she has been dealing with the past several weeks, she has been feeling good with no real complaints. I’m praying this continues!
Hello, everyone! Happy Sunday evening to each of you. I just realized that I did not send out an update this past Wednesday. Although I know the majority of you keep up with our daily Facebook post, I understand that you look out for weekly updates, too. So, let’s get to it!
Last Wednesday while at Morgan’s clinic visit we learned that her blood counts were still low, specifically her platelets. This means that her 2nd month of IV chemotherapy for this phase was postponed another week. Currently, she is 3 weeks behind as a result of this.
We also learned that she was in need of another blood transfusion. Due to the antibodies that are in her blood as a result of multiple blood transfusions, 2 units were ordered Wednesday, and she was transfused Thursday. This is the scenario that occurs each time she is in need of a blood. Otherwise, she would receive them the same day.
With that said, she’s doing well. She has had some ups & downs since her appointment due to fatigue, nausea & headaches, but all things considered, she is hanging in there.
On that note, I hope you guys get a good nights rest and have a great week. We’ll plan on seeing you here on Wednesday and on Facebook until then. Take care!